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Disclaimer: We are not physicians or other healthcare providers. The inclusion of any assistive device, product, service or provider herein does not constitute a recommendation for that specific device, product, service or provider. We accept no responsibility or liability for the selection or use of any device, product, service or provider by any visitor to this site.

For SIDS, SIDS-at-risk, and dysautonomia, most interventions are palliative; that is, they are designed to lessen symptoms / discomfort / high risk. Autonomic dysfunction symptoms range from mildly inconvenient to life-threatening. Life can be made a lot safer and more enjoyable if we take the time and trouble to manage both the external and internal environments, and to assist the symptomatic body to avoid unnecessary stressors. We present some of the tools designed to modify the environment or to assist the body in its adjustment to environment, environmental changes, and various tasks. Please do your own
online searches to ensure optimum choice.

Some of these items may appear to be expensive, but all of them together cost less than one relatively modest funeral.” AMSAD report; October, 2008.

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TEMPERATURE: The ANS controls the body’s reaction to temperature and temperature changes. Heat and overheating are precipitators and potentiators. Heat reactions can range from mild / uncomfortable to deadly. Some individuals go into cardiac arrest at temperatures ranging from 72º up. Changing from temperature to temperature can also trigger dysfunctional autonomic responses, as the dysfunctional autonomic nervous system overloads or just fails to accommodate. Many react to cold / colder temperatures, although research indicates that sleeping in 70º or lower is better at reducing risk, provided that
conditions contributing to rebreathing are addressed [excess coverings, etc].

Comfort and visibility are important in some work environments, but teens tend to focus on attractiveness [“coolth”] and comfort, in that order. To encourage the use of these items, you should get your teen or other patient involved in making choices.

COOL VEST: heat protection. These vests can be worn over or under clothing. They use high tech methods to fight heat stress by cooling the core areas of the body. Most of them are adjustable and made of attractive, durable materials in a wide range of colors. Some people feel perfectly comfortable wearing the external vests; others prefer to wear those concealable under their clothing. A white concealable children’s cool vest weighs less three pounds, while most adult vests weigh around 5 pounds. Glacier Tek has some interesting products for adults, including armor vests, protective panels that keep sharp objects from damaging the cool packs [NailStop], high visibility and camo vests, and vests for dogs – which might be a good idea for your service dog if you live in a hot climate. Glacier Tek has recently produced a pink vest for breast cancer awareness. They do not sell head / neck cooling products because of the danger in cooling the head / neck without cooling the body’s core. Glacier Tek uses a unique “green” phase change material for their cool packs, while many other companies still use a chemical combination of crude oil byproducts which can present hazards – and which must be disposed of using hazardous waste material methods. The rechargeable cooling packs maintain 59º temperature for up to 2 ½ hours, and can be easily changed out while you immerse the first set in cold water to recharge them [about 20 minutes]. Child-sized vests are usually designed for 30 to 90-pound individuals. We recommend that purchasers acquire an extra set of the cooling packs in order to extend wearing time, so dysautonomics can enjoy longer periods of outdoor time and better interact with peers. A small to mid-sized ice chest / cooler is great for storing the second set, and recharging the first. For information or to order a cool vest, go to or search online for “cool vests.” Discounts may be offered; ask about them.